CMT UK, the charity that offers support to people with the rare, inherited neurological condition Charcot-Marie-Tooth (CMT), will hold its 26th annual conference at Hilton Swindon Hotel on Saturday 5 April.
Some 170 members with the condition will gather to hear about the charity’s ambitious plans to increase its income to £2m over the next five years, meet its first ever fundraising manager who was recently appointed and hear the latest findings from researchers at the UCL Institute of Neurology.
Although this is the first time the conference has been held at the Hilton Hotel, it is the second time it has been in Swindon, as the town is seen as a central and easy to reach for the majority of members.
The conference will comprise guest speakers, open forums and workshops offering advice on how to live well with CMT and boost happiness and wellbeing.
CMT UK member, Eileen Sealey from Morden said: “The conference gives people with CMT a great chance to learn more about the condition from expert speakers, as well offer support to one another.
“This is a rare condition and quite often people won’t know anybody else with it in their village, town or city so it’s a fantastic opportunity for us all to get together to talk to others who really understand.”
CMT UK’s chief operating officer, Karen Butcher (pictured), said: “This is a big year for CMT UK, as we’ve just taken on our first ever fundraising manager, Nichola Hibbert, who will be at the conference to talk to our members about how they can get involved.
“We need extra funds for research into the condition and to provide support for those who have it. In addition, the changes in public health and social care service and the welfare benefits system are affecting members hugely and we need funds to support them.”
As part of its commitment to growth, CMT UK has also pledged £30,000 over the next three years for vital research into the progression of the condition at London’s UCL Institute of Neurology.
CMT UK currently provides services to more than 2,000 people affected by the disease, named after the scientists who discovered it. Currently incurable and steadily progressive, CMT is thought to affect some 23,000 people in the UK, causing muscle weakness in the lower legs and hands.
To find out more contact Karen Butcher on 01202 432048 or email firstname.lastname@example.org