Page 10 - link magazine

10 The Link Magazine • May 2004
Butterfly child support Easter meets West over the craft table
A child with the skin as delicate as a butterfly's wings has been given The Parivaar Asian women's group which meets at the West Swindon
free access to one of the town's most popular tourist attractions, Family Project enjoyed a practical activity course before Easter focus-
Butterfly World Studley Grange garden and leisure park. ing on traditional western crafts.
Heather Skerry from Gorse Hill night through a stomach tube.
suffers from the painful skin con- Mum Wendy explained that
dition epidermolysis bullosa, EB, there are only 2,500 sufferers in
which means there are no anchor- Britain who are supported by the
ing fibres to keep the layers of skin chari ty Debra. "I wrote to the But-
on her body together. The result is terfly Centre to ask if we could
chaffing and blistering where her hold a fundraising event here and
clothes rub or if she is touched. they kindly offered us a pass.
The condition also affects her "Because EB is quite rare Debra
internally, her eye sockets, on her is a small organisation and mem-
tongueandherthroatwhichmeans bers do what they can to publicise
she has difficulty eating and has to the condition. Heather copes amaz-
receive nutrients and drugs over- ingly well even though she is in
constant discomfort. She
never complains and just
V says the blisters will get Blooming good project, back from left, Nadira Khatun, tutor Jill Ryan-Browne,
x
better." coordinator Mina Bhogal, Thelma D'Costa. Front, Melba Sheffield, Harsav
Butterfly World man- Khaira, Mo Bassi, Manjit Kaur, Bulwinder Chana
ager Luke Brown said he The six sessions run by WEA Members take part in regular
did not know much about Women's Branch tutor Jill Ryan- courses run by the WEA and the
EB until Wendy called and
Browne covered cross stitch, card colleges. In the last year the group
he watched the Channel 4 making and flower arranging. has covered an introduction to
documentary in March.
1 k "Heather is such a bubbly Group coordinator Mina Bhogal computers, health awareness and
_ °' ^__
said, "many members are already English for speakers of other lan-
and bright kid, despite the accomplished in traditional crafts guages.
obvious pain she must feel. from other countries so it was re- Complementary therapy is the
"We're delighted to help
col t E ally good to try out different ac- topic for the summer term with
' Heather and Wendy an
` „ ^^ raise awareness of Debra." tivities and add our own touches." sessions on reflexology, aroma-
Parivaar meets on Mondays, therapy and Indian head message.
If you can helpfundraise
12.30pm to 2.30pm, at 15 New members are welcome at
for Debra locally, call The Gainsborough Way, Freshbrook to the group. A free creche is avail-
Link on 872282
Heather with Luke and butterflies www.debra.org.uk bring together women from many able. For details call 871303 or
different cultures. 886066.
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West Swindon istrict Centre
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I Tral Aslauraats B liko-eways I
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Holder of the Seafish West Swindon District Centre
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