Millie is a determined little girl, full of personality, with the sweetest cuddles and a sassy streak. If she likes something, you know it. If she doesn’t, you definitely know that too!
Julia’s House nurse Molly has known Millie for over two years: “We first met Millie and her mum Catherine when Millie was just four months old and had already spent her whole life in hospital.
“Meeting families early makes such a difference. It means they know friendly faces are waiting for them when they come home.”
Millie has complex health needs, including serious heart and breathing problems, but since leaving hospital she has grown stronger and more settled.
She used to need oxygen during the day as well as at night. Now she only needs it when she is unwell - a huge step forward.
There have been lots of other milestones too. Millie can sit more confidently, hold herself up and has even started bottom shuffling around the hospice.
“When you’ve known a child for years, those little moments mean so much,” says Molly.
For a long time, Millie’s favourite place was the sensory room, where she loved the lights, bubble tube and calming equipment.
Gradually, the care team has helped her feel comfortable exploring other spaces too, starting in the sensory room and then making their way through the garden to the activity room, where Millie can join in and play alongside other children.
Supporting the whole family is an important part of Julia’s House care. When Millie spends time at the hospice, it gives Catherine a chance to rest, recharge or simply have a quiet moment, knowing her daughter is safe, happy and cared for.
Millie also has an older brother, Reggie, so that support can make a real difference to family life.
“Millie can make you work for her smiles and giggles, so when you get one, it’s a brilliant feeling,” Molly adds.
“It’s been so special watching her grow stronger, become more comfortable with us and learn that our faces are familiar ones she can trust.”
Be part of Millie’s story too. Gifts in Wills are a fantastic way to support seriously ill children in Wiltshire and ensure we can be there for families like Millie's in the years to come.
Find out more about our Free Wills service www.juliashouse.org/alwaysthere
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