Nature of work - Children's hospice care in Wiltshire and Dorset
Address - Ground Floor, Allenview House, Hanham Road, Wimborne, BH21 1AS
Telephone - 01202 644220
Email - [email protected]
Website - www.juliashouse.org
Ella’s mum Chloe says Julia’s House is helping to fill her daughter’s world with giggles and laughter...
"When she was just three days old, we were told to prepare to say goodbye.
"Her consultants didn’t think she would survive long enough to come home. But Ella is five now, and she continues to surprise everyone.
"Ella has the most severe form of Edwards’ syndrome, a rare genetic condition that affects almost every organ and causes significant developmental delay.
"Children with this condition are often described as ‘incompatible with life’, but anyone who has met Ella knows how wrong that label is.
"She is full of joy, always smiling, and loves anything silly. The sillier you are, the more she laughs.”
Every moment matters
"Life with Ella is unpredictable. Even small illnesses have meant hospital stays, and there have been frightening moments along the way.
"But Ella is tough, and we have learned to treasure every single moment together."
A safe space
"Ella has been supported by Julia’s House for two years. She adores her nurses and carers, especially her named nurse, Molly, who always brings out the biggest smiles and giggles.
"Ella loves sensory play, messy activities, music and baking sessions. Most importantly, we know she is safe.
"We can relax, knowing the team understands Ella completely and knows exactly what to do if anything happens."
Fun and friendship
"Because Ella is extremely vulnerable, she often misses out on socialising with other children. That’s why Julia’s House is so special. It’s a place where Ella can be herself, safely surrounded by other children who understand life with complex medical needs.
"The moment we arrive, Ella gets excited. She loves the children, the noise, the music and the fun.
"She thinks kids are the funniest people in the world."
A long and proud history of bringing vital help to children and their loved ones
Julia’s House is proud to describe itself as your local children’s hospice, providing specialist care for children with life-limiting conditions and support for their exhausted families, giving them all a chance to have the magical moments and memories every child and family deserves.
A spokesperson said: We've been providing community care in Wiltshire for more than 10 years and specialist support at our hospice in Devizes since it opened in 2017.
"In 2023, the Big Dog Art Trail brought Swindon together in support of local children and families, and we’re proud to now be part of the town through our Swindon charity shop. Thank you to everyone who has supported Julia’s House by shopping with us at our Regent Street store."
Read more of Ella's story and discover how Julia's House support families in your community by visiting juliashouse.org.ella
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